Showing posts with label diagnosis. Show all posts
Showing posts with label diagnosis. Show all posts

Sunday, September 23, 2012

Embracing My Illness

This is something I never thought I would write, until I read a reply from Patti yesterday. I have asked for her permission to make it a post, and am hoping she will let me share it with everyone.

I’ve been fighting my illness, but really there is no way to beat it (not yet, anyways). So I need to stop fighting, and accept a few things. Here are some:

 -        My diagnosis.
-        There is no cure. (Not yet).
-        Taking medications. They cause side effects, and I don’t want to take them when I’m feeling really well. When I’m feeling well, it makes the whole “being sick” thing feel like a mistake.
-        My limitations. Stressful situations aggravate my illness, and I need to avoid them.
-        My work. I need to modify my work to accommodate my illness, otherwise I will just keep getting sick.
-        My lifestyle. I can no longer drink alcohol or have caffeine. I have to have a regular bedtime, otherwise my disrupted sleep will throw me into a dangerous depression.
-        I can’t tolerate too much change. I need stability.
-        My anxiety. I will always have trouble being around other people.
-        My need for order in my life.
-        My need for exercise and proper diet.

Here are some things that my illness does to me. It:

-        Makes me not want to exercise.
-        Makes me crave carbs.
-        Makes me start big projects, and work on them continuously until they are finished.
-        Causes me to create grandiose plans.
-        Makes me feel like I’m smarter than everyone else.
-        Makes me less tolerant.
-        Makes me stay in bed, not shave or shower, and cry a lot.
-        Makes me want to hurt or kill myself.
-        Causes my brain to overload, so I become slow at making decisions and can’t think clearly.

Everyone gets sick at some point (even Superman got sick when Lex Luthor exposed him to Kryptonite). This feels like it isn’t fair, but that’s life. This just happens to be my disease.

I’ve never realized this, but I can embrace my illness with all of its quirks and limitations, and live with it in a positive way. (I was going to make a comparison to marriage there, but realized that I would not have a great day with my wife if I did that).

Saturday, September 8, 2012

The Probing Psychologist

Don't worry, he wasn't an alien.

At the time I was hospitalized, it was standard practice (I think) to have two things done: a CAT scan (I don't think they do these any more because of the increased risk of brain cancer); and a visit with a psychologist. The CAT scan was to make sure that I didn't have anything physically wrong with my brain. It showed that I indeed had a brain.

I think the difference between a psychiatrist and a hospital psychologist is this:

- A psychiatrist works with your brain chemistry, using chemicals and exposure to different stimuli (like light and electricity), to change the way your brain works.

- A hospital psychologist uses verbal and written diagnostic tests to determine to what extent your disease is caused by past experience.

My meeting with the psychologist started with me filling in forms with those little ovals you have to draw on with pencil. You can't use X's, or check marks, or O's; you have to fill in the little ovals exactly within the lines. This is hard to do when you have tremors from psych meds, so I was proud of my not-too-messy result. It was the same kind of pride I had in grade one when I got a perfect mark for colouring in my clown without going beyond the borders. (I hate clowns, but I wanted a good grade).

The Psychologist fed the sheets into a machine. Then he got a print-out. He looked at it, clearing his throat.

"It seems that you have behaviours that make it appear that you need to be rescued."

"Really? What kinds of behaviours?" I asked, genuinely worried. Was I talking about things that made me seem like I needed sympathy? Did I have a predisposition to be needy?

"You bang your head. And, you attempted to kill yourself. Do you enjoy being rescued?"

"I'm relieved to be rescued," I said. "I don't want to hurt myself."

"Interesting..." he said. He made some more notes.

And he made some more.

And some more.

"Excuse me," I interrupted. "Are you diagnosing me? If you are, I would be interested in knowing what you think."

"I think that you may not be entirely truthful about this voice you hear. It would be very rare. But if you are being truthful, then you would have a depression-induced psychosis."

That concluded the session. I felt low - "lower than a rattlesnake's belly in a wagon rut" the cowboys would say where I grew up. It hurt to be accused of lying.

You know what? Despite all of the note-taking, psychiatrist visits, and the visit with the psychologist, they all got it wrong. I find that interesting, and would love to meet them all again to let them know.

Sometimes, even with page after page of diagnostic tests and interview after interview with psychiatrists, nobody asks the right questions.

Not once, to my recollection, was I ever asked if I had experienced symptoms of hypomania.

Not once, to my recollection, was I ever asked what happened after I was prescribed an SSRI three months previously.

Those two questions may have been enough to diagnose me as bipolar, and for the doctors to consider that I might be in a dangerous mixed state (where one experiences symptoms of hypomania and depression at the same time). The risk of suicide is extremely hight in a mixed state, and would explain why sometimes I was happy in hospital, sometimes irritable, and sometimes incredibly depressed.

It would have affected my treatment, too. For two years I was on ineffective medications with horrible side effects.

Luckily, today I have a fantastic psychiatrist. Things are improving in the medical system. There is a more standardized way of collecting information, so that it is less likely to misdiagnose a patient.

Even so, where I live the average time from the first doctor visit to a proper diagnosis for a person with bipolar disorder is fifteen years.

I beat the average by three years, but I think that the medical system could do a lot better.